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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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 Hello everyone! Just joined nras, I just turned 40 - I guess I'm accepting in my own time and way the new me..... Been off methtrx for a while, trying to have a baby nothing has happened  , my consultant is giving this a few more months, then i have to go back on the medication. i have a lovely daughter, sadly developed ra just after she came along 5 years ago. Bolt out of the blue, happy to be a mum and a shock being told I have ra, I was 34 years old. I'm lucky, I work, make the most of the day, i dont discuss with people i work with due to me being a private person. Love to go camping in our motorhome, i have taken up the consultants advice, when i was first diagnosed: make the most of being up and about...................enjoy camping, seaside, my family & dogs, shopping, national trust, theme parks (peppa pig world)!!!!!!!. Before I was diagnosed, used to go to step classes, areobics - at least I can say I did that! I'm on thyroxine (had thyroid op when I was 21 yrs old). I'm on waiting list for feet operation, bunion & hammer toes the foot man advised!! any post op advice would be welcome. don't do facebook, recently joined twitter! Glad I joined nras, it has taken me a long time to join, kept thinking I do it tomorrow! i have read some postings, truly amazing people out there, keep smiling! Jane
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Jane,
welcome.
sorry to hear you were diagnosed at a young age with a young child as well. i found it hard enough at 56. i went into meltdown when i was diagnosed .. in the first week i lost over half a stone with the stress and anxiety i felt.
then there was the added stress of starting on these powerful drugs, which i found the forum so helpful for along with my wonderful Rheumy Nurse and the NRAS Helpline.
nice to hear you are doing as much as you can,
do keep posting and hope that baby wise things will happen for you soon.
i take Methotrexate, Hydroxy and Humira.
Suzanne
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Hello Jane- I have had a foot op but I'm afraid I have dodgy eyes and can't read the colour font you're using! Could you change the colour and I might be able to help? YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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Dear Jane. Hello and welcome to the forum. It's nice to 'meet' you. I just wanted to say hello and to wish you luck with the surgery and with trying for another baby. Best wishes from Naomi.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Jane
Welcome to the forum. You have found the right place for information, support and a laugh along the way. I was diagnosed with RA three years ago when I was 46 but think I have had it all my life but was never diagnosed properly until I became really ill with it.
Good luck with the trying to conceive. It took me three years with my Daughter and two months after we gave up "trying" and also gave up the infertility drugs, I conceived. The Obstetrician said I had obviously relaxed about the whole infertility situation. The bouncing baby is now 16 years old.
Love the sound of the camper van, seaside, family and dogs but not so sure about the theme parks.
Keep posting and take care
Jackie xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Hello Jane Welcome to the forum. I was diagnosed 4 years ago and still trying to come to terms with it all. Keep thinking that I will wake up one day and it's all been a bad dream. Went from being a person that put her hiking boots on at the weekend and went on long hikes in Derbyshire, gym three times a week to a crying heap in a chair unable to get up because her knees hurt so much. Other pains in various joints, well I'm sure you know what I mean. One day you think you can cope with it all, then it all comes tumbling down again when things start to go pear shape. You'll find lots of support on here from people who understand. Keep posting. We've got a Motorhome, Auto Cruise Wentworth ((think I've spelt that right). Happy Camping.  Paula
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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Hi Jane Welcome to the forum. What a shame to develop RA so young; although a lot of women do seem to develop it following pregnancy or the menopause, there must be some sort of hormonal thing going on.
I had a toe fusion operation three weeks ago. I was extremely good and sat with my foot up for a couple of weeks following the op (I'm not normally good at doing what I'm told) and had absolutely no pain, although the area where I'd had surgery did ache a bit when I had to go up and down stairs. Got to wear the surgical shoe for another five weeks which is a bit of a pain, it's very high. I do have to wear a sandal with a heel on the other foot otherwise I find I get a lot of pain in my hip because one heel is so much higher than the other, if you see what I mean.
Good luck with the surgery. Have you got a date for it yet?
Anthea x
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Rank: Advanced Member
Groups: Registered
Joined: 12/8/2009 Posts: 43
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Hi Jane,
Welcome to the forum,it took me 10 years to join and wish i had earlier!!.Im 42 now and i was diagnosed at 28 when my daughters were 5 and 3 years old.
I have a bit of a wonky foot and thought i was going to have surgery but i been advised to leave it for now.Sorry cant really help but a lot of people on here have had surgery.
Good luck with everything and i love your positive attitude.
Take care Poppy Xxx
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Rank: Member
Groups: Registered
Joined: 12/3/2009 Posts: 11
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Hi
My advice is to follow any advice the hospital give you about rest.
But and this is VERY important, if you even suspect that there is an infection do something about it straight away.
I had a double foot reconstruction and ended up with MRSA in one foot which took ages to sort out.
I thought it felt funny and did speak to the hospital but because I did not make a fuss they left it until the dressing was due to be changed 4 days later and by then the MRSA had taken over.
My feet look much prettier now, (not a reason to have surgery) and for a time were much less painful. Now, six years on, things have begun to feel uncomfortable again although not as bad.
Hope it all goes well. davannh (Anne)
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Hi again! Yes I had a hammer toe and bunion removed. My biggest advice is to get 'stuff' prepared for when you get home----have a small bag ready to hang round your neck for carting things around cos you'll be on crutches and no free hands! Have a grabber to pick up anything you might drop. DO keep your foot up while recuperating. Oh- and if you have problems with your hands then remember to tell them BEFORE you have your op because they will have to consider that when giving you some crutches. Keep a flask of tea near you during the day----and most importantly of all don't be shy about about using a jug downstairs if you need the loo! YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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Thank you for your replies. I am amazed how quick my date came through. Went end of April for first appointment re the feet, told the waiting time is 18 weeks for operation. Well, expecting September (the summer to enjoy the weather first)! Got letter last Friday (bank holiday weekend) - in week Wednesday 20th, had to change my hair appointment a day earlier!! So worried now, I'm an independant person! I have stocked up on washing tablets, loo rolls, washing up liquid, dog chews.........so my husband doesn't run out! He has been fab, I got an ipod for my 40th last month - hospital let's you on a local, don't want to be knocked out - must behave during the operation and not shout along to Tom Jones "sex bomb" hahahaha !!!! Shall keep you all posted. Jane X
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Rank: Advanced Member
Groups: Registered
Joined: 5/22/2010 Posts: 51
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In a way it will be good that your operation as been brought forward.You will be able to sit in the garden with a book having your foot up.Watching you child play.We have got to have some sun sometime surely.Take your mind off having a baby.This time next year it will all happen for you.So good luck just do what they tell you. Keep us posted Valerie- R
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Jane, welcome! I'm jenni, I'm 36 and have a 4 yr old birth daughter plus two older teens who we adopted. Peppa pig is a real favourite for our daughter and we live about 30mins away! I've just had a knee replaced. The foot isn't fab so I've got to get a surgical opinion, like poppy it's a bit wonky! I'm so pleased youve joined. There's lots of support on here. Jenni xx how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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Good, really, that it's the op's so soon, Jane, and yes, hopefully we'll have some lovely sun that you can enjoy while you recuperate. I wasn't given a choice for the op and had a general anaesthetic. I was only in hospital half a day and my husband was allowed to stay on the ward the whole time, so it was an easy afternoon really. Keep us posted and let us know how you get on. Anthea x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Hi Jane Sorry my welcome is belated, been pretty much out of action for several weeks due to very ill health but that's another story (and I do like my stories!) Anyway, before I sideline myself with irrelevancies, a warm welcom to the NRAS forum where you will make lots of new friends, find much useful information and receive support from others with similar problems. My name is Lyn, I'm married to Mike and we have four kidults, Abby who is 24 and lives and works in Stratford Upon Avon, Ian and Jake who are 19 and Louis who's 17. We live in Thornton Cleveleys in NW Lancashire. I was diagnosed with Rheumatoid 24 years ago and have since run the gamut of medication and many surgical procedures along the way. A month ago I was hospitalised and been diagnosed with (probably Rheumatoid related) Dilated Cardiomyopathy and Advanced Heart Failure. Rheumatoid meds are all now up in the air and I'm waiting for them to land (probably with a crash!). Hope everything goes well with your op next week. Get plenty of pain relief and much rest Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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 Hi Lyn Thanku for your kind message, hope u feeling okay? I had message on answerphone, operation was pm Wednesday, now am!! My tummy going over already! When I saw the foot man end of April, he said 18 weeks, so I set myself for nice summer, time away camping, now it's a few days away! Shouldn't moan...... I bought a grabber and leg rest this week on lidels....just wot I need!! I was happy to see these in the basket waiting to be brought. Everytime I go to the supermarket, I buy another large pack of loo rolls!! I have ordered a floral chair from asda, really pretty for the bedroom, bought a fold down wooden table from amazon this week so I can have upstairs to use the lap top, read the paper! The bedroom is like a spinster bedsit!!! Jane Xxx
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Good luck - hope your recovery is smooth! Sylvia xx Be kinder than is necessary because everyone you meet is fighting some kind of battle
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